Quality of life of children with phenylketonuria at rod el farag primary health care center in Cairo, Egypt : (Record no. 81493)
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| 000 -LEADER | |
|---|---|
| fixed length control field | 03356cam a2200349 a 4500 |
| 003 - CONTROL NUMBER IDENTIFIER | |
| control field | EG-GiCUC |
| 005 - DATE AND TIME OF LATEST TRANSACTION | |
| control field | 20250223032756.0 |
| 008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION | |
| fixed length control field | 210707s2021 ua d f m 000 0 eng d |
| 040 ## - CATALOGING SOURCE | |
| Original cataloging agency | EG-GiCUC |
| Language of cataloging | eng |
| Transcribing agency | EG-GiCUC |
| 041 0# - LANGUAGE CODE | |
| Language code of text/sound track or separate title | eng |
| 049 ## - LOCAL HOLDINGS (OCLC) | |
| Holding library | Deposite |
| 097 ## - Thesis Degree | |
| Thesis Level | M.Sc |
| 099 ## - LOCAL FREE-TEXT CALL NUMBER (OCLC) | |
| Classification number | Cai01.11.08.M.Sc.2021.Ma.Q |
| 100 0# - MAIN ENTRY--PERSONAL NAME | |
| Personal name | Mariam Mohamed Naguib Ahmed Eldaleel |
| 245 10 - TITLE STATEMENT | |
| Title | Quality of life of children with phenylketonuria at rod el farag primary health care center in Cairo, Egypt : |
| Remainder of title | An exploratory cross section study / |
| Statement of responsibility, etc. | Mariam Mohamed Naguib Ahmed Eldaleel ; Supervised Zeinab Emam Mohamed Afifi , Shaimaa Ali Mohamed Abdelfatah , Salma Abdelreheem Seddik |
| 246 15 - VARYING FORM OF TITLE | |
| Title proper/short title | جودة حياة الأطفال المصابى ببيلة الفينيل كيتون فى مركز روض الفرج للرعاية الصحية الأولية بالقاهرة: مصر : |
| Remainder of title | دراسة مقطعية استكشافية |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. | |
| Place of publication, distribution, etc. | Cairo : |
| Name of publisher, distributor, etc. | Mariam Mohamed Naguib Ahmed Eldaleel , |
| Date of publication, distribution, etc. | 2021 |
| 300 ## - PHYSICAL DESCRIPTION | |
| Extent | 153 P. : |
| Other physical details | charts , facsimiles ; |
| Dimensions | 25cm |
| 502 ## - DISSERTATION NOTE | |
| Dissertation note | Thesis (M.Sc.) - Cairo University - Faculty of Medicine - Department of Community Medicine |
| 520 ## - SUMMARY, ETC. | |
| Summary, etc. | Background: Phenylketonuria (PKU) is an inborn error in amino acid metabolism. It is characterized by an impaired ability to metabolize amino acid phenylalanine (Phe). The management of PKU is complex and burdensome; multiple challenges may represent strains on Quality Of Life (QOL) of both patients and their families. Aim: Improve quality of life among children suffering from PKU with the following objectives: to assess QOL among children with PKU and to study the factors which may affect QoL in these children. Methods: An exploratory cross sectional study was conducted among 120 PKU children attending Rod El Farag primary health care center in Cairo, Egypt. A structured interview questionnaire was designed to collect data from the guardians regarding socio-demographic and economic data, medical history, and nutritional assessment through semi-quantitative food frequency questionnaires, QOL assessment by PedsQL and impact of diet plan on family daily life by PKU-QOL questionnaires. Anthropometric measurements (weight and height) were obtained, z scores were calculated and nutritional status categorized according to WHO classification (2007). Results: The study showed the median age of the patients to be 3.2(1.8) years. A positive history of similar cases (PKU) in family was reported by 35 cases (29.1%). Stunting was of higher prevalence in the older age group. QoL was very high in children {u02C2} 5years and tended to decrease after words. Psychosocial domain in the < 2 year age group (74.3±6.2) and social domain in the 2-<5 year age group (87.3±11.5) were the least scores. Children aged {u2265} 5 years had low scores of all QOL domains. Dietary management of PKU represented a financial burden on most of families |
| 530 ## - ADDITIONAL PHYSICAL FORM AVAILABLE NOTE | |
| Additional physical form available note | Issued also as CD |
| 653 #4 - INDEX TERM--UNCONTROLLED | |
| Uncontrolled term | Nutritional status |
| 653 #4 - INDEX TERM--UNCONTROLLED | |
| Uncontrolled term | Phenylketonuria |
| 653 #4 - INDEX TERM--UNCONTROLLED | |
| Uncontrolled term | Quality of life |
| 700 0# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Salma Abdelreheem Seddik , |
| Relator term | |
| 700 0# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Shaimaa Ali Mohamed Abdelfatah , |
| Relator term | |
| 700 0# - ADDED ENTRY--PERSONAL NAME | |
| Personal name | Zeinab Emam Mohamed Afifi , |
| Relator term | |
| 856 ## - ELECTRONIC LOCATION AND ACCESS | |
| Uniform Resource Identifier | <a href="http://172.23.153.220/th.pdf">http://172.23.153.220/th.pdf</a> |
| 905 ## - LOCAL DATA ELEMENT E, LDE (RLIN) | |
| Cataloger | Nazla |
| Reviser | Revisor |
| 905 ## - LOCAL DATA ELEMENT E, LDE (RLIN) | |
| Cataloger | Shimaa |
| Reviser | Cataloger |
| 942 ## - ADDED ENTRY ELEMENTS (KOHA) | |
| Source of classification or shelving scheme | Dewey Decimal Classification |
| Koha item type | Thesis |
| Source of classification or shelving scheme | Not for loan | Home library | Current library | Date acquired | Full call number | Barcode | Date last seen | Koha item type | Copy number |
|---|---|---|---|---|---|---|---|---|---|
| Dewey Decimal Classification | المكتبة المركزبة الجديدة - جامعة القاهرة | قاعة الرسائل الجامعية - الدور الاول | 11.02.2024 | Cai01.11.08.M.Sc.2021.Ma.Q | 01010110083795000 | 22.09.2023 | Thesis | ||
| Dewey Decimal Classification | المكتبة المركزبة الجديدة - جامعة القاهرة | مخـــزن الرســائل الجـــامعية - البدروم | 11.02.2024 | Cai01.11.08.M.Sc.2021.Ma.Q | 01020110083795000 | 22.09.2023 | CD - Rom | 83795.CD |