MARC details
| 000 -LEADER |
|---|
| fixed length control field |
02868cam a2200325 a 4500 |
| 003 - CONTROL NUMBER IDENTIFIER |
|---|
| control field |
EG-GiCUC |
| 008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION |
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| fixed length control field |
211102s2020 ua dh f m 000 0 eng d |
| 040 ## - CATALOGING SOURCE |
|---|
| Original cataloging agency |
EG-GiCUC |
| Language of cataloging |
eng |
| Transcribing agency |
EG-GiCUC |
| 041 0# - LANGUAGE CODE |
|---|
| Language code of text/sound track or separate title |
eng |
| 049 ## - LOCAL HOLDINGS (OCLC) |
|---|
| Holding library |
Deposite |
| 097 ## - Thesis Degree |
|---|
| Thesis Level |
M.Sc |
| 099 ## - LOCAL FREE-TEXT CALL NUMBER (OCLC) |
|---|
| Classification number |
Cai01.11.28.M.Sc.2020.Re.H |
| 100 0# - MAIN ENTRY--PERSONAL NAME |
|---|
| Personal name |
Reem Mohamed Mahmoud Ramdan Abdelkareem |
| 245 10 - TITLE STATEMENT |
|---|
| Title |
Health related quality of life in children with crigler- najjar syndrome / |
| Statement of responsibility, etc. |
Reem Mohamed Mahmoud Ramdan Abdelkareem ; Supervised Mortada Hassan Elshabrawi , Ola Omar Shahin , Sherif Ramzy Baroudy |
| 246 15 - VARYING FORM OF TITLE |
|---|
| Title proper/short title |
جوده ومستوى الحياة المرتبطة بالصحة للأطفال اللذين يعانون من متلازمه كريجلر-ناجاار |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. |
|---|
| Place of publication, distribution, etc. |
Cairo : |
| Name of publisher, distributor, etc. |
Reem Mohamed Mahmoud Ramdan Abdelkareem , |
| Date of publication, distribution, etc. |
2020 |
| 300 ## - PHYSICAL DESCRIPTION |
|---|
| Extent |
141 P. : |
| Other physical details |
charts , facsimiles ; |
| Dimensions |
25cm |
| 502 ## - DISSERTATION NOTE |
|---|
| Dissertation note |
Thesis (M.Sc.) - Cairo University - Faculty of Medicine - Department of Pediatrics |
| 520 ## - SUMMARY, ETC. |
|---|
| Summary, etc. |
Aim of work:1- To assess HRQOL among pediatric patients with CNS and correlate it with the severity of the disease. 2- Assessment the cognitive functions in patients with CNS. Patients and methods: Cross- sectional observational study for all cases diagnosed with CNS typy1. HRQOL was assessed by using World Health Organization Quality Of Life BREF questionnaire (WHOQOL-BREF) for cases and the study short form-36(SF-36).The cognitive functions was assessed by Stanford{u2013}Binet Intelligence Scale: Fifth Edition (SB5). ResultsThe mean ±SD age of the patients was 5.48 ± 3.44 years. Eleven of them were females (57.1%), the other of them nine were males (42.9%) with age ranging between 1 to 18 years. No statistically significant difference was detected between cases and regards rural or urban residence or social level.The primary presented symptom was jaundice being present in sixteen (76.2%) of cases had mild degree of jaundice as a clinical presentation, three of them (14.3%) had skin pigmentation and five (23.8%) of them had neurological affection as a complications with no other system affection. The disease was chronic & non-curable. Sixteen (76.2%) of cases were diagnosed at the first month of life, twenty-one (100%) of cases had history of NICU admission, only five (32.8%) of cases had history of exchange transfusion as results of hyperbilirubinemia, only ten (47.6%) of cases had a compliance on phototherapy as a treatment |
| 530 ## - ADDITIONAL PHYSICAL FORM AVAILABLE NOTE |
|---|
| Additional physical form available note |
Issued also as CD |
| 653 #4 - INDEX TERM--UNCONTROLLED |
|---|
| Uncontrolled term |
Crigler- najjar syndrome (CNS) |
| 653 #4 - INDEX TERM--UNCONTROLLED |
|---|
| Uncontrolled term |
Health related quality of life in children |
| 653 #4 - INDEX TERM--UNCONTROLLED |
|---|
| Uncontrolled term |
Hepatitis quality of life questionnaire (HRQOL) |
| 700 0# - ADDED ENTRY--PERSONAL NAME |
|---|
| Personal name |
Mortada Hassan Elshabrawi , |
| Relator term |
|
| 700 0# - ADDED ENTRY--PERSONAL NAME |
|---|
| Personal name |
Ola Omar Shahin , |
| Relator term |
|
| 700 0# - ADDED ENTRY--PERSONAL NAME |
|---|
| Personal name |
Sherif Ramzy Baroudy , |
| Relator term |
|
| 905 ## - LOCAL DATA ELEMENT E, LDE (RLIN) |
|---|
| Cataloger |
Nazla |
| Reviser |
Revisor |
| 905 ## - LOCAL DATA ELEMENT E, LDE (RLIN) |
|---|
| Cataloger |
Shimaa |
| Reviser |
Cataloger |
| 942 ## - ADDED ENTRY ELEMENTS (KOHA) |
|---|
| Source of classification or shelving scheme |
Dewey Decimal Classification |
| Koha item type |
Thesis |
