000			03480cam a2200349 a 4500
003			EG-GiCUC
005			20250223032513.0
008			200112s2019 ua f m 000 0 eng d
040			_aEG-GiCUC _beng _cEG-GiCUC
041	0		_aeng
049			_aDeposite
097			_aPh.D
099			_aCai01.17.02.Ph.D.2019.Fa.R
100	0		_aFatma Zaghloul Mahmoud Abdelrazik
245	1	0	_aRelationship of informational support to the lived experience and quality of life for pregnant women with antiphospholipid syndrome / _cFatma Zaghloul Mahmoud Abdelrazik ; Supervised Yousria Ahmed Elsayed , Abeer Saad Zaghloul , Rania Mahmoud Abdelghani
246	1	5	_aالعلاقه بين الدعم المعلوماتى والتجربه المعاشه ونوعية الحياه لدى السيدات الحوامل المصابات بمتلازمة مضاد الفوسفوليبيد
260			_aCairo : _bFatma Zaghloul Mahmoud Abdelrazik , _c2019
300			_a163 , (27) Leaves ; _c30cm
502			_aThesis (Ph.D.) - Cairo University - Faculty of Nursing - Department of Maternal and Newborn Health Nursing
520			_aAntiphospholipid syndrome is a disorder of the immune system that is characterized by excessive clotting of blood and adverse pregnancy outcome that negatively affect women{u2019}s quality of life; as women with this disorder may experience devastating problems during pregnancy. Aim: 1) To explore the lived experience and quality of life for pregnant women having antiphospholipid syndrome; and 2) To assess the relationship of providing informational support to the lived experience and quality of life for these women. Design: Methodological triangulation approach was adopted which is acombination between quantitative approach and phenomenological qualitative research approach. Sample: purposive sample of 43 pregnant women with antiphospholipid syndrome.Setting: the high-risk pregnancy department at Obstetrics and Gynecology Cairo University Hospitals. Tools: Tools of data collection were; 1) Unstructured interview, and 2) the Arabic version of World Health Organization Quality of Life Questionnaire. Results: result of the study revealed that uncertainty was the core concept that reflected the experience of the pregnant women under study. This was represented in three major phases; uncertainty before diagnosis with antiphospholipid syndrome, uncertainty after diagnosis, and uncertainty during hospitalization. Seven themes emerged from the data analysis as follows; living in uncertainty, social burden, psychological suffering, fear of the unknown, stressful hospitalization, threats, and unsettled quality of life. There was an improvement in the perception of women with antiphospholipid as regard to rating their quality of life before and after informational support with statistically significant P< 0.001.There were no statistically significant differences between all domains before and after receiving the informational support with P {u2265} 0.05, except the environmental domain (P = 0.0001)
530			_aIssued also as CD
653		4	_aAntiphospholipid syndrome
653		4	_aQuality of life
653		4	_aThe lived experience
700	0		_aAbeer Saad Zaghloul , _eSupervisor
700	0		_aRania Mahmoud Abdelghani , _eSupervisor
700	0		_aYousria Ahmed Elsayed , _eSupervisor
856			_uhttp://172.23.153.220/th.pdf
905			_aNazla _eRevisor
905			_aShimaa _eCataloger
942			_2ddc _cTH
999			_c76303 _d76303