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| 003 | EG-GiCUC | ||
| 005 | 20250223032756.0 | ||
| 008 | 210707s2021 ua d f m 000 0 eng d | ||
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_aEG-GiCUC _beng _cEG-GiCUC |
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| 041 | 0 | _aeng | |
| 049 | _aDeposite | ||
| 097 | _aM.Sc | ||
| 099 | _aCai01.11.08.M.Sc.2021.Ma.Q | ||
| 100 | 0 | _aMariam Mohamed Naguib Ahmed Eldaleel | |
| 245 | 1 | 0 |
_aQuality of life of children with phenylketonuria at rod el farag primary health care center in Cairo, Egypt : _bAn exploratory cross section study / _cMariam Mohamed Naguib Ahmed Eldaleel ; Supervised Zeinab Emam Mohamed Afifi , Shaimaa Ali Mohamed Abdelfatah , Salma Abdelreheem Seddik |
| 246 | 1 | 5 |
_aجودة حياة الأطفال المصابى ببيلة الفينيل كيتون فى مركز روض الفرج للرعاية الصحية الأولية بالقاهرة: مصر : _bدراسة مقطعية استكشافية |
| 260 |
_aCairo : _bMariam Mohamed Naguib Ahmed Eldaleel , _c2021 |
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| 300 |
_a153 P. : _bcharts , facsimiles ; _c25cm |
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| 502 | _aThesis (M.Sc.) - Cairo University - Faculty of Medicine - Department of Community Medicine | ||
| 520 | _aBackground: Phenylketonuria (PKU) is an inborn error in amino acid metabolism. It is characterized by an impaired ability to metabolize amino acid phenylalanine (Phe). The management of PKU is complex and burdensome; multiple challenges may represent strains on Quality Of Life (QOL) of both patients and their families. Aim: Improve quality of life among children suffering from PKU with the following objectives: to assess QOL among children with PKU and to study the factors which may affect QoL in these children. Methods: An exploratory cross sectional study was conducted among 120 PKU children attending Rod El Farag primary health care center in Cairo, Egypt. A structured interview questionnaire was designed to collect data from the guardians regarding socio-demographic and economic data, medical history, and nutritional assessment through semi-quantitative food frequency questionnaires, QOL assessment by PedsQL and impact of diet plan on family daily life by PKU-QOL questionnaires. Anthropometric measurements (weight and height) were obtained, z scores were calculated and nutritional status categorized according to WHO classification (2007). Results: The study showed the median age of the patients to be 3.2(1.8) years. A positive history of similar cases (PKU) in family was reported by 35 cases (29.1%). Stunting was of higher prevalence in the older age group. QoL was very high in children {u02C2} 5years and tended to decrease after words. Psychosocial domain in the < 2 year age group (74.3±6.2) and social domain in the 2-<5 year age group (87.3±11.5) were the least scores. Children aged {u2265} 5 years had low scores of all QOL domains. Dietary management of PKU represented a financial burden on most of families | ||
| 530 | _aIssued also as CD | ||
| 653 | 4 | _aNutritional status | |
| 653 | 4 | _aPhenylketonuria | |
| 653 | 4 | _aQuality of life | |
| 700 | 0 |
_aSalma Abdelreheem Seddik , _eSupervisor |
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| 700 | 0 |
_aShaimaa Ali Mohamed Abdelfatah , _eSupervisor |
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| 700 | 0 |
_aZeinab Emam Mohamed Afifi , _eSupervisor |
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| 856 | _uhttp://172.23.153.220/th.pdf | ||
| 905 |
_aNazla _eRevisor |
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| 905 |
_aShimaa _eCataloger |
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| 942 |
_2ddc _cTH |
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| 999 |
_c81493 _d81493 |
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